Tag Archives: Barriers

The Blackboard, or, “My Cancer Recovery Meme”

Picture a blackboard. On the blackboard are written two paragraphs, in chalk. The first one reads:

A nurse walks in to the cubicle. She is dressed in a hazmat suit. Fluid-proof gown down to her shins. Booties over her shoes. There’s a paper cap over her hair. She wears a face mask with clear plastic eye protection. On her hands, industrial-strength rubber gloves. She carries a 60cc syringe (very large!) filled with a red liquid called “The Red Devil”. This is the Infusion Center, where chemotherapy happens. She injects the liquid, all of it, into the port in my right upper chest. The chest tubing dumps the chemotherapy agent, Adriamycin, into a subclavian vein, which only has a few inches to go to my right heart where the poison gets circulated to every cell in my body.

The second paragraph goes like this:

I haven’t looked at my chest in the mirror yet. It’s been several weeks since the bilateral mastectomy and the bandages covered me for the first two weeks. I’m beginning to feel a bit stronger and maybe I’m ready to take a look at myself. I have to do it someday. So far, I’ve been quite skillful in taking care of myself without actually looking at my chest, mostly because David has been monitoring my wounds and bandages. But today’s the day, so I look. It’s bad. But, I knew it would be. Livid red scars running across my chest where my beautiful breasts used to be. I am now concave. I don’t have  any flesh at all there. I look like an old, old man. I take a deep breath and remind myself that the surgery saved my life. I may have been in hospice by now without any treatment. So, if this is the way it’s going to be, well, I can live with that. The scars will fade. Then, I notice a small, pale pink dot, about a quarter of an inch wide, down near the scar on my right chest. Is that a piece of surgical adhesive? Suddenly, I feel sick. I sit down hard on the toilet seat. That little pale mole is one that used to ride high on my breast, like a little ornament. Now its several inches lower and flat against my rib. I start to cry…

Well, the good thing is that these two paragraphs are getting erased, bit by bit, from the blackboard. It started right away, the first time I could walk farther than around the block with David. It happens every time I laugh with my daughter. An eraser comes into the picture and removes a few more letters.

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The Tramper Voyage is helping. Each time something wonderful happens, the eraser comes along and removes some of the paragraph. Looking up at the starry sky at Baxter State Park.  Gracie smiling at me when we played together. Swimming in the warm Gulf of Mexico at Cape San Blas. Zealen running out in the morning saying “I’m a blueberry!!” because he dressed himself all in blue. Riding a bike out into the beautiful wilderness with David.

At these times I am filled up with happiness and more words are erased.

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I’m not the only person in the world with a blackboard. These paragraphs, written in chalk, are my own personal events from cancer treatment. But, everyone has a blackboard, deep inside, where hurtful things are written. Nobody gets through life without one. The trick is to let awesome things happen, then recognize that your own personal blackboard is slowly being erased.

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I fully realize that my rate of erasure is accelerated by being on an extended vacation. But, good things and good people happen everywhere, all the time. Even at work. Sometimes, even in traffic!

With grace and love and hope, we can all heal.

– Jane

DAY 87 12/10/2012 The Travails of the day…

Leaving the free refuge of the Pensecola Walmart parking lot, we set out to try the Tramper at something new.  Riding a ferry in the Gulf from Fort Morgan to Fort Gaines below Mobile Alabama seemed like a fun coastal adventure.  A last-minute phone call nodded a no-go.  They weren’t accepting any trailers or RV’s today.  Drat!  Rolling along after packing up makes us think of “second-breakfast” sometimes, so when we saw the Coffee Cup Diner despite not having made it out of Pensacola yet, we parked out back. OLYMPUS DIGITAL CAMERAI motioned to Jane as we cross the parking lot that we may be meeting our waitresses out back here while they seemed to be taking their smoke breaks.

Inside we found just our kind of place.  A broiling flame raged at the stove where the short-order cooks blazed through their lists of orders.  A simple menu praised the grits and on the wall was a sign: No Grits No Glory.  Jane went into the restroom to wash up, and as I sat down a new experience unfolded.  All around me smart phones started screeching and beeping.  They blasted a Tornado Warning!  Of course we don’t have a smart phone so there I was peeking over people’s shoulders, gleaning what I could and waiting for Jane.  One phone owner bragged about his last tornado while I tried to sort out my own reactions.

I still have more Tramper destinations.  There are still places to go, things to do.  Maybe the tramper attracted this thing as trailers so often do?  I have walked along the actual path of tornado destruction before and seen news descriptions.  Knowledge sometimes tells you exactly what to do; other times it tells you there’s nothing you can do.

By now Jane is out at our table.  We debate briefly whether to drive and hope we pick exactly the right time and direction, or stay put.  We stay and order coffee, grits and a biscuit.  There is a Bruce Cockburn song we love that goes: “If this were the last night of the world, what would I do that was different unless it were champagne with you?”  Today it was grits and good coffee; the waitress got a pretty good tip too!

Jane texted Debbie who used an iPad in Baltimore to check weather.  The warning was being lifted.  We heard the next day several unconfirmed twisters had touched down from Birmingham to Pensacola.  We didn’t see any.

The road later offered its own surprises.  Heavy traffic near Mobile and an accident in the light misty rain at a highway split.  The kind where our crawling column of traffic arrived just before the ambulance, only one cop had pulled up and the poor harried car was facing the wrong way showing its defaced, unrecognizable grill-less front end.  Boy do we count our blessings and lack of rush.

Later we rolled into a drenching, driving rain in Alabama.  The crowned road wasn’t enough to shed the torrent and I found myself glad to be rolling slowly with good tires all around and separate brakes on the trailer.

No more than half an hour later we coasted into a small town, Robertsdale, where we took note of the usual strip of stores, Advance Auto, Dollar General, Nail, and pawn shops.  By the second light I smelled transmission fluid.  Five seconds later Jane asks, “whats that smell?”OLYMPUS DIGITAL CAMERA

Then the smoke!  Trying to block panic, I methodically look around for the right place to touch down.  I feel like a bush pilot, surveying the busy lots around where I would be in someone’s way or they in mine.  I pick a church on the right just in time to notice the transmission is shifting “differently“.  Shut it down, open the hood and EVERYTHING is soaked with boiling hot, red transmission fluid.  I can’t see a thing, can’t touch a thing, and can’t tell where all that red is coming from.  But there’s a steamy puddle growing on the ground already…

Yup, hood up as the universal sign “don’t tow me” and I advise Jane we will be entertaining ourselves for an hour while this thing cools.  I went and bought 4 quarts of Dexron, a roll of paper towels, box of rubber gloves, a bag of kitty litter and investigated the worst case price of a new radiator.  ~$240, and available within a few hours, I explain to Jane and the clerk that I probably won’t need it; it’s probably a transmission line going to the cooler up in the grill.   We also went to CVS for a little light shopping while the car continued to cool.

Of all the >100 mile off the beaten path places, all the night hours of driving, the rainy portions, and even the traffic jam this morning…our little 4Runner picked a town with 3 auto parts stores and “no grocer” to break down in.  Well, I have a paper suit just in case of these sorts of things.  (known as a bunny suit in the hospital world)

Where's-my-super-suit?

Where’s-my-super-suit?

Where is my super-suit?  Jane “what”?  Where-Is-My-Super-Suit?  (You’d have to have watched The Incredibles recently to get that reference).  So, I donned the paper suit, used half a roll of paper towels to dry everything, cleaned the front tires and found the culprit.  Whether I failed to tie the hoses down as well as I thought or the mechanic in New York accidentally knocked things loose doesn’t matter.

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The transmission line had risen above a critical height and been rubbed through by the fan.  Half an hour later and we were rolling safely again.  We determined to make it ALL THE WAY TO NEW ORLEANS.  Arriving the back way to St Bernard State Park at about 7:30 was of no concern to the ranger and we settled in for a quiet night in the Tramper.

– David

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It’s Not All Good

We try to write in a positive, upbeat or optimistic style. Why accentuate the negative when so much good stuff is happening?

However, that may lead readers to believe that the Tramper Voyage is one big ball of constant sunshine. That nothing bad, or even sort-of bad, ever happens. Not true!

To illustrate this point, I will indulge in a completely negative post. Here is a sampling of some of the not-so-great things along the way:

1. Day One, we forgot to pack some important stuff. debbie-downerThe generator, our passports, our bike helmets and the contents therein – gloves, glasses, etc. Also, Jane packed not one pair of reading glasses. (As a bonus, the passports were expired. Fortunately, we found a Postal Service employee who helped us through the renewal-on-the-fly process).

2. We’ve lost a couple of things, mostly laundry. A pair of lavender plaid pajama pants, a 65-year-old hand towel that was my grandmother’s, one grey sock.

3. On a hike in New York, we discovered to our horror, that a half dozen ticks were crawling on us or attached to each of us.

4. On the Kingdom Trails in Vermont, we became hopelessly lost and circled back to the same place 3 times. It also began to hail during the farthest point of the ride.

5. Jane fell on the rocks hiking back down from Sterling Pond in Vermont. Got a nasty scrape on my right forearm. I have a lovely jagged purple line from wrist to elbow.

6. Blog readers already know about this one: We blew a head gasket and were stranded in Rosendale, NY for 2 weeks. Not to mention the enormous repair bill.

7. Jane locked herself out of the trailer (and the truck) while David was out on a bike ride. Usually, we are never apart. Just this one time, David took an extra lap. I managed to pry open a storage door and found a screwdriver but the screws on the trailer entrance door are all burglar proof with nuts or washers on the inside. I waited for David to return and we pulled out one of the screens. This only worked because the windows were open and also because the keys were on a table immediately below the window we pried the screen off of.

8. We’ve been using a friend’s Hiking Trail GPS. We totally missed tracking a couple rides or hikes because we forgot to enter an endpoint to the trail or we only entered one waypoint for the entire day. This is no big thing, though, because mostly we don’t track much.

9. Drove away without the trailer lights hooked up. Fortunately, a friend was following us and gave us a call to let us know that we had no brake lights.

10. David broke a key off in the latch on an outside storage bin and had to be replaced with parts from camping World in NC.

11. Several (poorly made) door latches in side the trailer broke. David promptly fixed them by drilling a screw in to secure them.

12. The 4Runner bumper pinched the right trailer turn signal wire against the hitch and blew a fuse. Again, promptly fixed.

13. David’s butt doesn’t like too much driving.   ‘Nuff said.

14. We have spent the night in a couple of truly ugly campgrounds. Mostly these are private, not in a state or national park. In North Carolina, we pulled into a camp with 6 sites. It was basically a small gravel parking lot in a level space created by scraping a hill out of the way. The only green was the small septic drain field, also used as a dog walk (poop) area.

15. The biggest problem of all: traffic and other drivers! On the New Hampshire/ Massachusetts border a pickup abruptly pulled out halfway across our lane. He was coming out of a bar parking lot and seemed to have no awareness of us as we swerved and screeched. With David at the wheel, already talking about the safety margin driving slower than the speed limit on a mountain downhill, we came out of it without a scratch but our hearts were racing when we were safely on our way again.

So, that’s about it for the negative things. All in all it’s been quite a lovely and trouble free trip.

– Jane

DAY 52 – 11/5/2012 All Ashore That’s Going Ashore!

Not every voyage goes smoothly. Well, actually, very few voyages go smoothly!  Our ‘difficulties’ have been very small and very easy to take. You don’t get to the Age of Wisdom without having weathered some problems along the way.

A bit of shameless self-promotion, recently added to the rear of the Tramper.

A bit of shameless self-promotion, recently added to the rear of the Tramper.

In perspective, this is nothing! “This” being some car trouble and then, being delayed in New York for two weeks.

The car trouble was detailed excellently by David in a previous post so I won’t make an attempt to describe it here. In brief, we blew a head gasket on the 4Runner and spent 2 weeks in Rosendale, NY waiting for the job to be finished. The shop we chose really did an excellent job. The truck runs much better and gets about 40% better gas mileage, too. So now we’ve gotten the inevitable (for such a long trip) mechanical failure out of the way, we should be good to go for, hopefully, the rest of the trip. Optimistic? Sure. But that’s how we roll!

Sunrise on Saturday morning in Rosendale. Shortly after, the sun disappeared for another day

Sunrise on Saturday morning in Rosendale. Shortly after, the sun disappeared for another day

Grey, grey weather, a hurricane and a bit of non-communication on the part of the shop were really only minor irritants. David dealt with my sinking into despair from time to time heroically, as usual. The people of Rosendale were truly lovely and we made a couple of new friends: Jay and his dog, Blue. As for the shop that repaired the 4Runner? Well, all was forgiven, in terms of leaving us on tender-hooks, the instant we got the car back!

We are “home” but not actually living in our house! We are living in the Tramper, parked in the driveway. That’s perfectly OK because the Tramper is so nice, so comfortable. And, I don’t have to move my massive box of toiletries from one place to another!

Our wonderful daughter, Olivia, is living in our house. (I’m so happy for her – she just got a really cool full-time job using her newly-minted Master’s degree! Proud!) Olivia has two roommates, so the house is full and it would be silly to sleep on the couch when we have a perfectly good bed in the driveway.

2 of my friends, Julia and Charlie

2 of my friends, Julia and Charlie

We are visiting with our beloved families and seeing a few of our neighbors and friends. I have had fun seeing my small friends who live nearby. In the neighborhood, I am “Miss Jane” and I have some boxes full of toys and books that I share with my little visitors. It makes me pretty popular with the kids but also I love to play with them. I have seen Austin and Katie and Julia and Charlie. They give me joy and joy is something that you can never get too much of!

Apropos of nothing, I include this shot of a recent meal, cooking on the Tramper stove. The pots on the front burner are part of a set given us by Alex and Daria. We use something of the set every day!

Apropos of nothing, I include this shot of a recent meal, cooking on the Tramper stove. The pots on the front burner are part of a set given us by Alex and Daria. We use something of the set every day!

In 30 more short hours, we’ll be back on the road again and headed to the balmy breezes and warm temperatures of the South. It will be good to soak up some pleasant weather before the ski season begins.

– Jane

As you can imagine, my mind raced to logistics.  All of my tools and resources were right there, 50′ up the driveway.  First I unloaded unused and redundant items.  2 pair of shorts is plenty.  2 pair of long pants is plenty.  It is with shirts that I still have 3 T-shirts, 4 long-sleeved and several hi-tech long undershirts.  Shhh, don’t tell Jane.  Then I made a pile of duplicate tools.  I even set out the Cabana, an open tent meant for beaches that I thought might have been nice in the desert.  The same desert where I’ve seen lizards and small animals leaning into an inch of shade to escape the mid-day sun.  Yes, on second thought, a Cabana wouldn’t really do much.  We’ll be re-purposing pieces of our treasured foil-bubble-foil at that point.

Other than dropping some weight, I changed the oil in the truck again.  Again because OIL is the lifeblood of a motor.  Clean oil under pressure actually prevents metal from touching metal.  The floating takes place in the “bearing clearance” usually only .002 of an inch.  To relate to that space, imagine the thickness of a piece of paper wrapped around a shaft.  However, dirty oil is liquid sandpaper.  Oil and grit can in other uses be called lapping paste and actually intentionally cut metal.  Motors don’t want that.  I changed it after only 300 miles, right after the mechanic changed it during the head gasket repair.  He did nothing wrong, but the whole disassembly process likely allowed antifreeze to leak through while waiting for the heads back from the machine shop.  Now I can put the truck back on a normal schedule.

Tomorrow I will try out a hitch purchased for our Subaru.  It is designed to transfer some of the trailer tongue weight to the front of the truck.  Perhaps we’ll like it, perhaps not.  All this truck talk may have some of you wondering, “did I buy the wrong truck?”  Maybe.  But really, we now have about 5 thousand in a 4WD SUV.  No car payments, cheap insurance, and maybe we’ll sell it when we get back?  Overall, it seems like part of the journey for me.  If we went to a car dealer, signed on the line, went to an RV dealer, signed on that line too, we might reach that point where we felt we “couldn’t afford” to do this thing.

We can’t afford not to do this thing!  Tonight I find myself excited to be on the way to the next destination…the trip itself.

– David

DAY 43: 10/27/2012 The Calm Before

a still night after a long ride

a still night after a long ride

After our ride Saturday, we enjoyed sweet calm and a near-full moon over the campsite.  A beautiful sunrise snuck gleaming under the cloudline.  Here we are in Rosendale “awaiting the storm”.  Various caring family and friends worry that we should rent a car and come home (or some variant).

We’ve decided to stay our course here in NY.  Rushing South will not guarantee that we don’t wind ourselves right into the worst part of the storm or a frenzied car accident.  We are on high ground, over 100′ above the river, have inspected for dead trees and branches, and bolted down the solar panel.  I’ve found a piece of plywood to cover it with and we are willing to run or drive for better shelter as necessary.  We have a good new friend in Jason with us here, who, unlike us has a vehicle in case we should need to evacuate.

With that in mind, today was partially a cleanup/batten-down preparation day.  However, in spite of the eternal grey skies, we fully charged our solar batteries, have a full tank of propane, and have stored 5-7 days worth of water.  We will be better off than some even if power is out.  I saved the food from our freezer in Baltimore last Summer during the derecho using this camper’s propane refrigerator.  “We’re good”.

On to the day post, Jane and I did a killer bike ride Saturday.  ‘Manah-manah’ part two.  Actually the park we biked to (no car, remember) is called Mohonk Preserve.  The showcase of which is Mohonk Mountain House on the top of a mountain.  I think the showcase is the Mountain and Preserve.

The Mohonk Mountain House (perhaps the back view)

The Mohonk Mountain House (perhaps the back view)

The Mountain House looks like a 10 story compromise between decades of differing opinions.  There is a turret, a peaked roof, German timber/stucco style and innumerable other features.

Surely rife with luxury.   If the tennis court and golf course didn’t belie the depth of indulgence

A little trick for when you don't have a map: take a photo and you can scroll around it on your camera for details

A little trick for when you don’t have a map: take a photo and you can scroll around it on your camera for details

available, then the massage therapist who gave us directions or the Wheelhouse with its fleet of new Specialized Rockhopper bikes for rent lent a clue.

Our ride carried us just beyond that distant 'squared' notch near the Trapps access area.

Our ride carried us just beyond that distant ‘squared’ notch near the Trapps access area.

Funny story about the phrase; “on top of a mountain”.  Some years ago, Jane was riding with me in Susquehanna State Park.

Jane rolls the carriage trails at Mohonk

Jane rolls the carriage trails at Mohonk

We were weaving our mountain bikes up and down on the ridge along the river when fatigue overwhelmed her.  We had climbed and clawed our way up and down the 2-300 ft. elevation single track trail more than a dozen times headed back to the car.  Then, while climbing yet again, my exhausted Jane cried:  “WHERE is the parking lot? on the top of a F-ing MOUNTAIN?”  Today, once again our goal was on the top of a mountain.  You really need to hike or ride from a valley to a mountaintop sometime to understand.

The Shawangunks are an eastern climbong mecca, seen as we biked back on the Under Cliff Trail

The Shawangunks are an eastern climbong mecca, seen as we biked back on the Under Cliff Trail

This is likely a frequent view Jane is stuck with

This is likely a frequent view Jane is stuck with

I always think of Ski Roundtop or Ski Liberty in Pennsylvania as small mountains with about 600′ elevation change.  The lifts make it seem so short, I ski down in 1 and  ½ minutes (and thats not racing).  Well, hike up or bike up a 600′ elevation gain and you know its a nice long way.  The summit at Mohonk Mt. is ~1275′, several of the dips we went down into were 600′, and our little town of Rosendale sits at about 200′ above sea level.

We biked up that road down there by the barn to get this view from the top

We biked up that road down there by the barn to get this view from the top

We peddled up over a thousand feet to get up there.  The views and carriage roads made it worth it.  Then the sweep back downhill to town also repaid us in swift glee.

A downhill smile, after hours of climbing!

A downhill smile, after hours of climbing!

Ah Rosendale.  I don’t think I’ve given Rosendale the delightful credit it deserves.  We went to the Rosendale Theater Friday to see an enthusiastic, interactive Rocky Horror Picture Show.  Funny that thing won’t die.  Proving a good diversion and exposing a vibrant true community theater.  Rosendale bought the place and keeps it going with other more mainstream productions including dance, opera and plays at the edge of the Big Apple.

The town has a main street, great bike shop, barber shop, guitar shop, antique store, three convenience stores, two gas stations, a laundromat, several bars, an organic grocer and an earthy feel under the Northeast cautious attitude (also known as chill).

Main Street, Rosendale, NY

Main Street, Rosendale, NY

It has a groove, I think I could live in a place this size.

– David